PFIC Family & Scientific Conference 2023
We were able to bring together patients & families, clinicians, researchers and industry in order to:
- Share scientific knowledge,
- Share patient experiences,
- Identify ways that we can collectively improve the lives of patients and families.
The PFIC Family & Scientific Conference 2023 was a hybrid meeting with opportunities to attend both in person and virtually. We invited families, researchers, and industry professionals to join us in person at the Disney Coronado Springs Resort in Orlando, Florida on Thursday May 4th and Friday May 5th 2023.
Weekend Overview
Thursday, May 4: Check-in & Welcome Dinner
Friday, May 5: Presentation Day & Connection Dinner
Saturday, May 6: Focus Groups
PFIC Scientific Conference Made Possible From the Generous Gifts of Our Sponsors:
Albireo Pharmaceuticals
Mirum Pharmaceuticals
Cincinnati Children’s Hospital
And Supporters:
Rare Disease 360
Purpose of the Scientific Conference
To bring together patients, researchers, providers, and industry partners to co-create a strategic plan of shared research priorities.
Learn more about the PFIC Network Mission for science and research: