PFIC Awareness Day Fundraising
We envision a world with better, more accessible care and treatments for all PFIC patients.
Our goal is to build a research program centered on the patient voice and collaboration in research. By doing so, we will improve care and treatment outcomes for PFIC by strengthening relationships with expert researchers at our annual Family & Scientific Conference, growing our patient registry into a valuable research tool, and directly funding research that is meaningful to our community.
Our Fundraising Goal
We have big dreams over the next two years and we are going to need your help!
Our fundraising goal this year is $80,000.
Hosting a PFIC Awareness Day fundraiser is essential for us to reach our goal this year. Hosting a fundraiser may seem daunting, but we are here to help. Our new peer-to-peer platform makes it easier than ever to raise funds and tell your story to make an impact. We are currently looking for fundraisers for our 5th Annual PFIC Awareness Day. Your fundraising efforts will directly contribute to building a research program centered on the patient voice and collaboration in research. By doing so, we will:
- Improve care and treatment outcomes for PFIC by strengthening relationships with expert researchers at our annual Family & Scientific Conference,
- Grow our patient registry into a valuable research tool,
- Directly fund research that is meaningful to our community.
If you’re interested in becoming a fundraiser, download the Fundraising Toolkit below:
Last Year’s PFIC Awareness Day Impact
2024 PFIC Awareness Day Kickoff Event!
Last year’s event was such a hit, we are teaming up again with Redpoint BBQ and our local Red River Gorge community for the 2nd Annual PFIC Charity Open and Labor Day Party. This special event is an opportunity to come together to have an amazing day of family fun while raising awareness and funds to support research for this rare disease.
Join us in Campton, Kentucky for a day of disc golf, cornhole, family fun, live music, food and more!
To learn more about how you can help support the PFIC Network’s programming next year, download the fundraising toolkit below!
Contact us with questions or if you’d like to get involved!