The 2026 PFIC Family & Scientific Conference is here!
July 9-10, 2026 | Chicago, Illinois
This unique gathering will bring together PFIC patients, families, clinicians, and researchers for connection, learning, and collaboration. More than just a scientific meeting, the conference is a chance for families to share experiences, build friendships, and be part of the effort to improve care and find better treatments.
We hope you will join us!
Registration Now Open!
Early bird registration will be open until May 16, 2026. Register by this date to secure your seat and receive a complimentary conference t-shirt. Don’t miss this opportunity to lock in the best rate while helping us plan for an amazing event!
Scholarship Opportunities for PFIC Patients and Families:
We have a limited number of travel scholarships available for people affected by PFIC and their families to offset the costs of conference attendance, including transportation costs, airfare, lodging and conference registration. US-based patients and their families are eligible for up to $1,500 USD in travel assistance, and international patients and families are eligible for up to $2,000 USD.
Scholarship applications are due by March 2nd. Applicants will be notified of the status of their application by March 13th and must register for the conference by April 13th. Applicants must be registered for the conference before scholarships will be disbursed.
If you are a US resident, the National Organization for Rare Disorders (NORD) offers several scholarships to help cover travel costs that rare disease patients and caregivers may apply for:
Agenda
Preliminary Conference Agenda & Schedule
*Exact times subject to change
Day 1 (Thursday July 9th)
| 12:00-4:00pm | Closed Internal Board & Committee Meetings (By invitation) -Leadership Luncheon for PFIC Network Board of Directors & Scientific Medical Advisory Board -PFIC Research Consortium Steering Committee Meeting |
| 4:00-5:30pm | Welcome Hour at Conference Hotel Registration check in & community networking opportunity |
| 5:30-8:00pm | Fun Community Outing to Navy Pier |
Day 2 (Friday July 10th)
| 8:00-9:00am | Breakfast |
| 9:00-9:15am | Opening Remarks |
| 9:15-9:40am | Keynote: “State of PFIC: Care & Research” |
| 9:40-9:50am | Patient Story |
| 9:50-11:25am | Managing PFIC Today (Talks + moderated panel) |
| 11:25-11:40am | Break |
| 11:40-11:50am | Patient Story |
| 11:50am-1:00pm | Lay-Friendly Research Updates (Part 1) – Presentations |
| 1:00-2:00pm | Lunch |
| 2:00-2:25pm | Lay-Friendly Research Updates (Part 2) – Panel Discussion |
| 2:25-4:15pm | Interactive Roundtables: Research Participation |
| 4:15-4:30pm | Break |
| 4:30-4:40pm | Patient Story |
| 4:40-5:20pm | “Ask Me Anything” Panels |
| 5:20-5:30pm | Closing Remarks |
| 6:00pm | Conference Dinner |
Venue & Lodging
Sponsorship Opportunities Available
Interested in supporting the PFIC community? Sponsorship opportunities are available for the 2026 PFIC Family & Scientific Conference. Your support helps make this meaningful event possible and ensures accessibility for families from around the world. Contact us to learn more about sponsorship packages and benefits!