Thank you to everyone who attended the 2025 PFIC Charity Open & Labor Day Party!
This year, PFIC Network kicked off our annual PFIC Awareness Day fundraising campaign with the 3rd Annual PFIC Charity Open & Labor Day Party at Redpoint BBQ on September 1, 2025. For the first time, the Charity Disc Golf Tournament was PDGA sanctioned, drawing a record 48 players to compete on one of the most scenic disc golf courses in Kentucky. Later in the day, the excitement carried into the Cornhole Tournament, where 24 teams faced off for cash prizes.
The celebration continued with an energetic performance by Brother Smith, great food, raffle prizes, and a dazzling fireworks finale. This year’s event once again showcased the generosity and spirit of our local RRG community. From players to sponsors, volunteers to families, everyone came together to make the 2025 PFIC Charity Open & Labor Day Party a success—raising vital support for families affected by this rare liver disease.
Thank you to our sponsors!
We are endlessly grateful to our local Red River Gorge community for their support of our rare cause! This event is made possible through the generous support of our sponsors!
Presenting Sponsor
Entertainment Sponsors
Disc Golf Sponsor
Tournament Sponsor
Cornhole Sponsors
Food and Beverage Donors
Disc Golf Lunch Sponsors
Disc Golf Hole Sponsors
Prize & Raffle Sponsors and Volunteer Supporters
About Our Cause
What is PFIC?
Progressive familial intrahepatic cholestasis (PFIC) is a group of rare genetic disorders that can lead to liver failure during childhood. While the exact prevalence is unknown, PFIC is estimated to affect 1 in 50,000-100,000 people worldwide. There is currently no cure for PFIC. Many PFIC patients receive liver transplants to help manage their disease.
How does PFIC Network help?
Progressive Familial Intrahepatic Cholestasis Advocacy and Resource Network was founded in 2018 by 3 mothers of PFIC patients. Our mission is to improve the lives of patients and families worldwide affected by PFIC. We strive to equip patients and families with the educational & support resources they need to navigate life with a devastating disease, create a sense of community & hope for those affected by PFIC, and to support research that will one day lead to a cure. While PFIC Network is based in the United States, we serve a global population and provide resources for patients and families all over the world.
