Fundraising

PFIC Awareness Day Fundraising

We envision a world with better, more accessible care and treatments for all PFIC patients. Our goal is to build a research program centered on the patient voice and collaboration in research. By doing so, we will improve care and treatment outcomes for PFIC by strengthening relationships with expert researchers at our annual Family & Scientific Conference, growing our patient registry into a valuable research tool, and directly funding research that is meaningful to our community.

Our Fundraising Goal

We have big dreams over the next two years and we are going to need your help!

Our fundraising goal this year is $50,000.

Hosting a PFIC Awareness Day fundraiser is essential for us to reach our goal this year. Hosting a fundraiser may seem daunting, but we are here to help. Our new peer-to-peer platform makes it easier than ever to raise funds and tell your story to make an impact. We are currently looking for fundraisers for our 5th Annual PFIC Awareness Day. Your fundraising efforts will directly contribute to building a research program centered on the patient voice and collaboration in research. By doing so, we will:

  • Improve care and treatment outcomes for PFIC by strengthening relationships with expert researchers at our annual Family & Scientific Conference,
  • Grow our patient registry into a valuable research tool,
  • Directly fund research that is meaningful to our community.

If you’re interested in becoming a fundraiser, download the Fundraising Toolkit and sign up for the Fundraiser Training Webinar on Tuesday, August 15 at 7 PM EST by clicking the buttons below.

Last Years PFIC Awareness Day Impact

$45,000 Raised for PFIC Awareness Day 2022
$30,000 Was raised to fund our first ever research grant.
35,000 People reached through social media outlets and awareness campaigns.

To learn more about how you can help support the PFIC Network’s programming next year, download the fundraising toolkit below! Contact us with questions or if you’d like to get involved!