PFIC Awareness Day Fundraising

PFIC Awareness Day 2024 was our biggest fundraiser yet, and there’s more to come!

Thanks to all our sponsors, teams, donors, and friends that made our first month-long fundraiser a huge success! We raised $52,500!

We set a goal to raise $80,000 starting with awareness day and we’re more than 60% there. Starting with our kickoff Labor Day Disc Golf Party and going through Oct 31, our community gathered together to improve the lives of patients living with PFIC. Because of you, we can host more scientific roundtables, connect more families to resources, and continue building a place of empowerment for our rare disease community!

But we are quite there yet! We still have about $27,000 to reach our goal, and to get one step closer a world without PFIC. So keep telling your stories, sharing the work of PFIC Network, and donating to make an impact. And mark your calendars for PFIC Awareness Day 2025!

two young girls wearing pfic network shirts stand behind a fundraising table with signs asking for donations to support PFIC Network

Ways to get involved:

  • Form groups of supporters with family & friends!
  • Share our posts & encourage your network to give!
  • Start a social media fundraiser for PFIC during October!
  • Tell anyone & everyone why this cause is important to you!

How do I make a group?

  1. Set a fundraising goal and make a personal campaign page on Givebutter!
  2. Recruit family and friends to set up their own individual fundraising pages.
  3. Provide your group with resources to use while promoting their page.
  4. While fundraising, your group will share their pages ontheir social media. Track your group’s progress throughout and offer support as needed.
  5. Don’t forget to thank your team and supporters when the fundraiser is over!
I have a group, now what?  Get creative with ways to fundraise!
  • Host a bake sale!
  • Ask a local business to host a PFIC Day where some of their proceeds go to PFIC Network!
  • Have a PFIC party!
  • If you can imagine it, make it happen!
  • SHARE, SHARE, SHARE: Anywhere and everywhere!

Need more fundraising resources?

Check out our fundraising flyer or fundraising toolkit! You can also contact us directly with questions!

Last Year’s PFIC Awareness Day Impact

$40,000+ raised for PFIC Awareness Day 2023
$30,000 set aside to fund our second PFIC Research Grant!
35,000 people reached through social media outlets and awareness campaigns.

2024 PFIC Awareness Day Fundraising Kickoff Event!

Last year’s event was such a hit, we teamed up again with Redpoint BBQ and our local Red River Gorge community for the 2nd Annual PFIC Charity Open and Labor Day Party. This special event was an opportunity to come together to have an amazing day of family fun while raising awareness and funds to support research for this rare disease.

Thanks to the generosity of our donors, sponsors and attendees, we raised over $20,000!


To learn more about how you can help support the PFIC Network’s programming next year, download the fundraising toolkit below!

Contact us with questions or if you’d like to get involved!