The PFIC Family Conference is an opportunity for PFIC Families worldwide to come together at one event. This is a great chance to learn more about the disease from experts in the field, meet other families who share the same struggles and hear of their triumphs, and maybe even make lifelong friends.
This year our conference was virtual! Using the MyCityMed virtual conference platform, we are hosted a two day webinar based conference with global availability and translation services. On July 16 & 17, registrants attended the virtual conference center which included lounges for viewing live webinars, a dedicated international networking lounge, and exhibit hall with booths that contained more information on a variety of different community interests.
We are committed to making these opportunities available and accessible to our global community. We are proud to report that we sold 109 tickets to this years virtual conference. We had participants from 13 difference countries and provided scholarship for attendance to 19 families. All participants will receive a PFIC Network swag bag in the mail which includes a copy of our educational brochure and materials. Swag Bags and Conference T-Shirts are now available for purchase in our online store. Check it out while supplies last!
For those who have registered, you can login to the platform anytime before July 30 to view the recorded sessions. After that date, some of the sessions will be made available on pfic.org for further viewing.
Check out all the topics that were covered during this conference!
There were two Keynote presentations during this conference that focused on genetics. These topics are a focal point for better understanding of PFIC not just as one disease, but as a set of genetic diseases with many differences.
Keynote #1: Basics of Genetics: PFIC as a set of genetic diseases of cholestasis
Presented by: Dr. William Balistreri, MD and Dr. Chunyue Yin, PhD
Keynote #2: Genetics of PFIC: A deep dive into what is known about each disease individually
Presented by: Dr. Richard Thompson, MD and Dr. Laura Bull, PhD
To view the full agenda along with the speakers, please click the button below!