Awareness Day 2020

Our second annual PFIC Awareness Day was a huge success! Thanks to your generous support, we raised $23,181.48 for PFIC! Remember, $20,000 of that was matched for a grand total of $43,181.48!!!!!!! Because of you, the PFIC Network will be able to provide all of our Peer Support and Advocacy Programs through 2021, and continue the important work that we have started to make these programs accessible worldwide. Your generous support also has provided hope for more resources, more education, better treatment options, and more research in order to improve the quality of life of PFIC patients worldwide.

Our mission to improve the lives of patients and families all over the world would not be possible without the support of our community and generous donors. We are excited to prepare for our third annual PFIC Awareness Day on October 5, 2021, and we hope that everyone can be a part of it.

The larger our community of supporters, the more traction we can have in finding a cure for the many forms of PFIC.We have many different ways for you to get involved and do your part as an advocate. The larger our community of supporters, the more traction we can have in finding a cure for the many forms of PFIC.



Fundraising is not possible without amazing supporters like you!

Last year we raised over $20,000, which was our goal. We then had a very generous donor provide a $20,000 match to bring us to $43,181 raised! We are so thrilled that everyone supported us so much in 2020.

Our PFIC Awareness Infographic had 74 Shares – Reached 9,464 people

Engaged with 1,539

That’s a whole lot of Awareness for our Rare Disease #itchingforacure

To get a better understanding of the disease and learn more, you can go to our YouTube Channel.

Thank you to those who supported PFIC Awareness Day!!!!!

Corporate and Small Business Sponsors

PFIC Community Fundraising Supporters

We had countless donors this year, and we are grateful for each and every one of you! We respect donor anonymity, but if you would like us to show our gratitude for your support on this page, please contact us and we will add you to this list!

  • Lisa and Matt Crompton and family
  • Alexandra and Walter Perez & family
  • Karen and Greg Hawman & family
  • Emily and Jeremy Knakmuhs & family
  • Todd Hendrecks
  • John and Tara Kearns & family
  • Mariah Sabino & community, in honor of Milo
  • Charmaine Gravener & family
  • Halli Alampi & family
  • Jamie Belcourt
  • Francesca Lombardozzi
  • Lizzie Wallace
  • Lila Simpson
  • Elaine Shutt
  • Erin and Doug Hovey & family

“PFIC Awareness Day was the highlight of the year for our organization. Our board of directors, volunteers and families appreciate your support in making this day a success.

As we come together as a community to support those who itch, we will plant seeds that will leave an impact for years to come.” – Walter Perez, PFIC Network President