
2025 Cholestatic Liver Disease Summit
The 2025 PFIC Family & Scientific Conference was part of the inaugural Cholestatic Liver Disease Summit, held in Aurora, Colorado on June 26-28th, 2025. We cohosted this collaborative event with the Alagille Syndrome Alliance and Biliary Atresia Research and Education (BARE). The summit brought together patients, families, clinicians, researchers, and industry leaders from around the world to share knowledge, build collaborations, and advance care for rare cholestatic liver diseases.
Over three days, the program featured keynote talks, scientific presentations, patient and caregiver panels, and interactive breakout sessions on topics such as nutrition, genetics, mental health, and transition into adulthood. Roundtable discussions and cross-stakeholder dialogues emphasized both the exciting progress being made and the ongoing challenges in improving diagnosis, treatment, and quality of life. We are grateful to our partner organizations and to all participants who shared their expertise, stories, and energy in Aurora.

Conference recordings, session summaries, and next-step recommendations will be made available in the coming months—please check back soon for updates!


